E-Poster Presentation ESA-SRB-ANZBMS 2021

Asia Pacific Fragility Fracture Alliance – Fragility Fracture Network Hip Fracture Registry Toolbox: A Resource to Support Registry Implementation (#729)

Paul J Mitchell 1 2 3 4 , Hannah Seymour 3 5 , Emer Ahern 6 , Matthew Costa 2 3 , Jay Magaziner 3 7 , Joon-Kiong Lee 8 , Derrick Chang 9 , Robert Blank 10 , Jacqueline Close 3 11 12
  1. School of Medicine, University of Notre Dame, Sydney, NSW, Australia
  2. Nuffield Department of Orthopaedics, Rheumatology & Musculoskeletal Sciences, University of Oxford, Oxford, United Kingdom
  3. Fragility Fracture Network, Zurich, Switzerland
  4. Synthesis Medical NZ Limited, Auckland, New Zealand
  5. Fiona Stanley Hospital, Murdoch, WA, Australia
  6. Department of Geriatric Medicine, Cork University Hospital, Cork, Ireland
  7. University of Maryland School of Medicine, Baltimore, MD, United States
  8. Orthopedic Surgery, Beacon Hospital, Petaling Jaya, Selangor, Malaysia
  9. National University Hospital, Hsin-Chu Branch, Hsin-Chu, Taiwan
  10. Garvan Institute, Darlinghurst, NSW, Australia
  11. Falls, Balance and Injury Research Centre, Neuroscience Research Australia, Randwick, NSW, Australia
  12. Prince of Wales Hospital, Randwick, NSW, Australia

Introduction: Hip fracture registries provide a mechanism to benchmark care provided by hospitals against clinical standards. As of May 2021, registries have been established in approximately one tenth of countries worldwide. A hip fracture registry toolbox is intended to provide practical tools to support registry development.

Method: The toolbox has been developed as a collaboration between the Asia Pacific Fragility Fracture Alliance (APFFA) Hip Fracture Registry Working Group and the Fragility Fracture Network (FFN) Hip Fracture Audit Special Interest Group.

Results: The toolbox summarises essential components of national quality improvement programmes for hip fracture care. This features best practice clinical standards, including quality indicators (e.g. measures relating to pain assessment, time to surgery, early mobilisation, secondary fracture prevention and multidisciplinary management). Hip fracture registries provide the technical infrastructure for hospital teams to benchmark the care they provide against quality indicators. The toolbox also focuses on practical aspects of registry establishment including clinical leadership and engagement, getting buy-in from diverse stakeholders, building the case for change, registry planning and funding, piloting a registry, governance and ethics considerations, and a minimum common data set and data dictionary.

A summary of the extensive literature on multidisciplinary care of hip fracture patients is provided, in addition to detailed case studies of national registries in Australia and New Zealand, Spain and the United Kingdom. A series of short interviews published on YouTube complement the toolbox with experience from leaders of well-established registries.

Conclusions: The APPFA-FFN hip fracture registry toolbox provides a distillation of the global experience to date in establishing national registries. The toolbox is free for download from www.apfracturealliance.org/HFR-toolbox/ and is intended to support colleagues throughout the world who would like to establish a registry in their country.